
We are Alport UK, a patient-led charity supporting people and families living with Alport across the United Kingdom.
We work to improve the lives of everyone living with Alport syndrome in 5 ways:
- Support
- Information
- Research
- Collaboration
- Fundraising
Read more about our people and our work.
About this website
This website is designed to:
- help you better understand Alport
- connect with the wider Alport community
- stay up to date with the most recent research on Alport
Whether you are a patient, a carer, a clinician, a researcher or a pharmaceutical representative, you will find trusted information, research updates, practical support and opportunities to engage with the Alport community.
If you have any questions, please contact us.



